Haydn’s Wish (The Haydn Wileman Memorial Trust) was established as a not-for-profit trust by the friends and family of Haydn Wileman. The Trust is run entirely by volunteers; we have no paid staff. All the money we collect from fundraising goes into medical research.

Trustee Emma-Joy Wileman

Haydn’s mum is the face (and backbone) of Haydn’s Wish. In addition to leading our team of volunteers at the Allergy Shows, she travels the country giving talks about asthma and allergy to schoolchildren, parents and teachers, plus she’s on the parent panel at the Royal Alexandra Children’s Hospital. She’s spoken before a parliamentary select committee and liaises with the Professor at the Brighton and Sussex Medical School (BSMS) to organise our research funding.

Trustee Julie Shepherd

Haydn’s granny oversees our web and social media presence. She is also a director of the Saltdean Lido Community Interest Company, which is restoring a Grade 2*-listed art deco lido.

Trustee Jacci Milne

Jacci is our treasurer. She also volunteers for Girlguiding and runs a Rainbow and Guide unit. She enjoys camping with the Guides and toasting marshmallows! Her other interests are travelling to new places and watching F1 and cricket.

Trustee Justine Midhurst

Justine is a trustee and committee member and says that between working full time and all her volunteering for Haydn’s Wish, she hasn’t got time to have a life.

Trustee Martin Milne

Haydn’s step-dad is a trustee and committee member.

Patron Michael Chowen

We are proud to have local philanthropist Michael Chowen as our patron. He has been a Deputy Lieutenant of East Sussex since 2009 and a Governor of Brighton College since 2003. He is currently a Director of The Highlanders Museum Board and also a Patron of Chestnut Tree House Children’s Hospice.

He maintains strong links with the Universities of Brighton and Sussex and their Medical School and was awarded a CBE in the New Year for services to philanthropy.

Mascot Huxley Hippo

Huxley is a hippo and he wears purple (two of Haydn’s favourite things EVER). Huxley’s role within the charity is to give out High Fives on request and to be available to be hugged by his legion of young admirers.

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